HEAP symposium – Ethics, law and big data
How can the results of exposome research further the right to health for all? And how can this be achieved in an ethical way, respecting the rights of those whose data and tissue are being used? In his contribution to the HEAP symposium highlights series, Evert-Ben Van Veen, a lawyer specialising in health and privacy […]
HEAP symposium – Infrastructures for exposome research
What does the future hold for exposome research infrastructures in Europe? Jana Klánová is Professor of environmental chemistry at Masaryk University in Brno, Czech Republic, and coordinator of the ESFRI Research Infrastructure for human exposome (EIRENE). In her contribution to the HEAP Symposium highlights series, she presents EIRENE RI (Research Infrastructure for EnvIRonmental Exposure assessmeNt […]
HEAP symposium – “Biobanking and the exposome”
As part of HEAP\’s \”Symposium Highlights\” series, Kurt Zatloukal, Head of the Diagnostic and Research Center for Molecular BioMedicine, Medical University Graz, and Director of BBMRI.at, Austria, discusses how biobanks could add value to exposome research in a 15-minute presentation. Biobanks have expertise in collecting, preserving and providing access to biosamples, as well as processing […]
TEDx talk – the case for a data driven approach to health policy
The notion of sharing data during public health emergencies is generally accepted, and has been a cornerstone of the COVID-19 pandemic response. But should data sharing be limited to emergencies or a few high-priority threats? We now have the technology to enable near real-time, broad-based, continuous information, and a collaborative framework for data collection, sharing, analysis, […]
Pointing the way to ethical, reusable exposome data
The launch of the Data Management Plan at the end of May 2020 is a significant milestone for HEAP. Developed by the team at the Medical University of Graz, Austria, who are leading the delivery of HEAP’s Data Interoperability and Sharing Work Package, the Data Management Plan sets out how the cohort data sourced from wearable […]